My Kid Should Be Up There, Too
Confirmation is wonderful! But this year, it was also very difficult. Ben is the same age as those being confirmed. This joyous, yet jabbing day is common for parents who have a child with a (dis)ABILITY, like Ben. Even so, we thank God for the wonderful confirmatnds and their families! We also thank Pastor Andy for a heart that reached out to us and touched ours. God is good!
Tests for drug to help Down Syndrome patients to begin in Japan.
Interesting article on the “”Japan Daily Press” and concept as possible help for those who have Down syndrome. http://japandailypress.com/tests-for-drug-to-help-down-syndrome-patients-to-begin-in-japan-0131516
Pope Invites Boy with Down Syndrome for Spin on Popemobile
This warms my heart. www.cbsnews.com/8301-202_162-57590194/pope-francis-invites-boy-with-down-syndrome-for-spin-on-popemobile/
Traveling with a Special Needs Child
This article infuriates me on so many levels. A couple of years ago we had a similar experience, though not as bad. Still irks me! Did the TSA Harrass Us Because of Our Special Needs Son?by Marla Murasko http://www.huffingtonpost.com/marla-murasko/did-the-tsa-harrass-us-because-of-our-special-needs-son_b_3085495.html
“WHY DOES A VALUED PERSON ADVOCATE FOR A PERSON WHO IS LESS VALUED?”
The following is a draft for a address I gave to my fellow “graduates” and their families from the Georgia “Parent Leadership Support Program” [which is under the Georgia Advocacy Office]. {Introduction} Let’s get this off the table first: The question is not a good one. Obviously there aren’t people who (should be) valued more […]
